Friday, February 22, 2013

Alpha-1-Antitrypsin Deficiency: its time for a cure!!!

Respiratory Decade is inviting you to important Respiratory events:

To celebrate the 50th Anniversary since the Discovery of Alpha-1-Antitrypsin (AAT) LOVEXAIR organized two key events: The International Scientific Conference related to AAT Deficiency and the 4th International Patient Congress, which will be celebrated from 11-13 April, in the Hotel Hilton Diagonal Mar, Barcelona, 2013. This year being the Year for Rare Disease in Spain. 

Barcelona will be the world capital in liver and lung disease research and specialized healthcare for this momentous occasion to create awareness about Alpha-1-Antitrypsin, in both research and  patient community empowerment. Sten Eriksson, one of the discoverers of AAT Deficiency, will also be attending this important event. 

For this special occasion we will welcome more than 200 delegates from around the world, with representatives from patient and scientific communities, particularly America and Europe, as well as leading scientific experts in this chronic rare disease.

The 4th International Patient Congress, 12-13 April will bring together patients and their family members and in parallel, an International Scientific Conference on Alpha-1 Research, 11-12 April, simultaneously attended by healthcare professionals and leading scientists in Alpha-1 research and industry with expertise in advanced therapies.

The main focus of this event is to create heightened awareness about Alpha-1-Antitrypsin deficiency; bring together representatives from Alpha-1 organizations from around the world and to promote debate and dialogue about the impact and the situation in each country; identify unmet needs; learn the latest developments in research in advanced and innovative therapies, and bring together both researchers and patients to improve and support building a cure for Alpha-1 in the future: "It's time for a cure".

The goal is also to empower patients and their organization leaders, build on sharing best- practices and skill-sets and form an international working group to move forward in key areas which are considered important, across the community as a result of participating in this event.

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